At this point they were not sure what exactly it was, so cancer would surely kill her.
This mass appeared to have a crust around it...this meant that if it was blood vessels like they originally thought, it had leaked. The crust was blood that formed around the mass. If this was the case it could continue to leak. Eventually this would lead to a massive stroke I was told between the age of now to 24. A massive stroke could cause a number of problems including death.
If we chose to do the surgery. The risks were. Lose of eye sight in the one eye, memory loss, (which included identity, loved ones, all motor skills) The best way to describe it would be that they were erasing her hard drive and I was going to have to start all over with everything I ever taught her.
As parents the thought as Hattie's parents were. We could not go day to day wondering if this would be the day she was going to throw a clot in her brain. We had seen how resilient Avri was. Kids in general are very resilient. Hattie was a fighter. Her will to run, play and just live life was to great for her to not make it through this surgery with a full recovery.
I did the one thing I could do. I shaved her head! I let her cut it until she was done and then I gave her the clippers. We together made it a fun event instead of of trauma on both of us. I asked my church ward to have a day of fast and prayer for her. I left the rest to the hands of the surgeon and God. The surgery lasted 5 hours. I got updates about every hour and a half. " we are still dissecting the brain, she is stable, vitals look great, we will call you in about another hour and a half" The last call in the waiting room that came through for me " Hattie is out of surgery, everything went well, the mass was leaking blood vessels, we showed seizure activity in that spot once we got to it. She is in recovery they will call you in about an hour to go see her" "we still do not know her functioning level so prepare yourself".

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The day she went home |
Okay, You are one tough cookie. I didn't realize that Hattie went through surgery also.
ReplyDeleteYep, Crazy hu! There is no link to the two girls. No genetics involved in the two cases. I really think Hattie just had to know what Avri was going through and for some reason I just get torchered as a mother!
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