Tuesday, April 13, 2010

My Baby has hydrocephalus

My Baby has hydrocephalus
I have thought about this for a long time and finally decided to document Avri's life. I think if there is only one person who needs to be inspired by her story than this is worth the effort!
I was just barely graduated when I found out I was pregnant with Avri! Just for the record I was 100% healthy, the 2nd party involved.....well at least during the act that caused the pregnancy was 100% healthy. He pushed hard for a termination of this pregnancy!
I am not going to lie, this pregnancy was a pregnancy from hell. I was so sick, words can not describe how sick I was. Because of some tests done early on the doctors were able to find that Avri had a 1 vessel umbilical cord. This meant she was missing a main artery that would supply her with half of the nutrients she would need to grow. So I had regular ultra sounds to watch her growth. There were questions all through out this pregnancy if some thing may be wrong with her, but after every possible test the conclusion was always a good one. She was growing, she was healthy and genetically everything was right!
I was 36 weeks along when I went in for a regular check up. The doctor measured my stomach and at the end of the check up she said she was sending me in for one last ultra sound to check the growth of my little girl! I was so clueless at that time. I went in and enjoyed watching as the ultra sound techs checked her out. She looked fine to me. My precious little baby. She was going to be here soon and I could not wait to play house with her. Several techs came in, I think they even sent in a doctor to look at things, and yet I lay there watching. The thought never crossed my mind that these people were looking at the very thing that would change the corse of my life for ever.
I went back to school. I had enrolled in cosmetology school as soon as I found out I was pregnant so I could provide for my daughter. Shortly after returning to school I got the call. My doctor wanted to see me to follow up about the ultra sound. Still I thought everything was fine. I walked into my doctors office and sat down. I am sure I had a smile on my face waiting to hear the news she had to share with me.
I can hear every word she said to this day as if it was yesterday! My baby had water on her brain, my stomach had grown 4 inches in 1 week. This was bad. This meant she was at a level 4 out of 5. This meant my baby was going to be a vegetable, she would never walk, she would never feed herself, she would be in diapers forever. What kind of life would this be for some one, and me....I was a single very young mother. This was my chance to walk away from this mess and to have the life I deserved. No mother of my age and alone would be able to handle a baby with this kind of problem. She told me to go to the local hospital and have her naturally. This would add stress to her and because of her severe condition they would put her on a no food diet and she would peacefully slip away pain free in a couple weeks.
I remember being so numb thinking this can not be, I asked what other options I had. She told me of a hospital in Portland Oregon. They had a nero surgeon practicing there that was one of the best in the country. He could do surgery and relieve the pressure in her head but the results would be that of what she told me. I remember with out a second thought telling her that i My baby will live. I will do what it takes and deal with it as it comes. I called my mom to come and get me, I was so lost I knew I would not be able to find my way home. The doctor then explained everything to my mom. She was not there to make my decision for me but to support the one I had already made.

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