2006 Staff infection in her brain!

It is February 2006. My daughter has just been urgently wheeled out of her hospital room to go have her shunts that were just placed the day before taken out. This all developed so rapidly no one had even talked to me yet.
I had been so strong up to this point. I cried here and there but never once lost faith that Avri would pull through and be ok. I knew that this was her plan. I believe that before we came to earth we both made the decision to go through this together. I often think that she loved me so much and knew I would be weak that she made the sacrifice to keep me in line. It is very hard though in the moment to always remember this and to let it give me comfort. So I locked myself in her bathroom and I cried and cried. I remember a social worker coming to the door and knocking asking if she could talk to me. I don't remember any thing I said to her if I said anything at all. I do remember thinking staff infection in her brain. This could be it, I could lose her. I was not praying but I was thinking in terms of a higher power must be listening to my thoughts. I thought " I can handle anything you throw at me, I can make an example of it and let it strengthen my faith and try to strengthen others, but I can not handle loosing her" "do what you want to me but don't take my girl, not now" There was not a thing anyone could have said to comfort me at this point in my life other than to say there was some mistake. I was angry and I was confused and more than anything I was scared to death. I was so scared that I had 3 other kids at home to take care of and all I could picture was me lying on Avris grave dying right along with her. I did not feel like I could go on even with all the love of my other kids without Avri.
Avri came out of surgery about an hour later. They had shaved her head, and I was in awe at how beautiful she looked. She was glowing. She looked so peaceful. She had the external drains in once again. The surgeon explained that she had a high fever and that her fluid was cultured and she had staff infection. It was a very resistant bad strand but they caught it right away so they felt good about her outcome. She would have to stay in the hospital for 2 weeks just to have IV antibiotics and then they would be able to put her shunts back in.
I think the two weeks was very full of sleepless nights because I do not remember much about it. Avri really struggled. She became so depressed sitting here every day. We had so many people rallying around her trying to cheer her up and keep her in good spirits. she was very upset that they had shaved her hair. We had fun colors of wigs sent and tons of very cute hats. She had a quilt made with all her classmates pictures on it. Scrapbooks with pictures and notes were sent up. she loved it all but just wanted to be home. Matt and I juggled the kids and being up here some how. I do remember feeling closer to heavenly father than I ever had. I felt like he was with me and I was able to experience a fraction of what he went through watching his only son suffer. Avri would sleep for hours on end and wake with very spiritual dreams. She would talk about lost family members that she was never close to. It seemed at times I could feel spiritual presences at her side watching over her. Although it brought me great comfort I to wanted to get back to life.
Two weeks went by.The infection cleared up, not easily but it cleared. Avri had her two shunts placed back in her head. We were sent home the next day. She made a full recovery. She stayed on her seizure medications for a full year and against doctors orders I weaned her off the medications due to side effects. I always felt like it was not her lot in life to have seizures as well and it was because of the shunt failure that the seizure ever happened. I was right. She did not need the medication and was even better after the side effects of the medication went away.