Avri did end up getting another ct scan and x-rays. One of her ventricals in her brain is bigger. The nero team decided to turn her presure down this time. Turning it down will make her dump all her cs fluid if her shunt is working properly. If it is not working properly her ventrical will still look big in the morning. If her ventrical is still big then she will go in for surgery just on that one side. So she has to lay flat all night...She is going to be happy when they put that bed pan under her! They also beleive that she has been getting plugged and then unplugging on her own for the last 6 years and that the spot where the shunt is sitting in her brain is no longer a good spot. They are doing some special high resolution ct scan in the morning so if they do end up doing surgery they can take the scan in the O.R. with them and it will act as a GPS to place the shunt in a diffrent spot.
In the morning if her ventrical have actually gone down then they are going to turn that side back up and turn the other side down and wait a day and see what that side does. So in the grand plan ...We are stuck up here for at least 2 more days either for brain studies or surgery or both.
If neither of these studies tell us anything then we are in for a world of hurt I am afraid. There is a migrain condition the doctor mentioned but he does not even want to go there until we know. So as bad as the first plan may sound we are crossing our fingers we don't go to senario 3.
Avri is doing better than she was when we got here. Her heart rate remains a concern but her headache has subsided on its own. (or transfered to my head?) On a funny note. The nurse came in and asked if we knew Avri's exact height. I said "no" I think I do but I don't trust what I think right now. Anyways....Avri said "well do you know how tall Mr Lindberg is??? Because I am taller than him" I may be the only one who finds that funny because I know her teacher and I am also tired.
Thats funny about the height thing. Kids are very associative. I remember growing up I had no idea how tall I was buy I would always compare myself with my grandma who was very short. The day I was taller than her was a big day in my life.
ReplyDeleteThanks for sharing. Let us know if there is anything we can do. Truly
Bruce Mackay
Love you guys. Call me if you need help with kids. I work Saturday so if your still there I will be in your room!! You are in my thoughts and prayers continually!!
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