The situation is that Avri is feeling great again. I am OK with this (her feeling better) but the yoyoing is killing me. The surgeon came in and talked to Matt while I drove the kids home and he basically said he would take her back right now and fix the shunt because they know it is not working, but It could just be blood working its way through and that it could resolve its self. The nero surgeon said that it would be on us if nothing was wrong or if something went wrong though because surgery is against his recommendation. ...So what parent wants that decision to be on them? I am so confused at all this and all the opinions of everyone and Avri being fine one minute and in serious condition the next. I am in no condition to make any decisions right now. so she is eating and up. They are NPOing her again at midnight and going to make a decision again in the morning.
The hospital has these therapy dogs that go around and visit the kids. This dog was so cool. He laid on the bed with Avri and when it was time to go the trainer said" Pray for Avri" the dog sat by the bed put his paws on the bed, put his head down and barked twice.
How frustrating! I think that I would get a second opinion. Why is the doctor being so stand offish and relaxed. It is your daughters life!!!
ReplyDeleteMatt and I had a long conversation with the doctor the day Avri went home. He said he felt really bad for putting her through all that they did but they have actually taken kids back for shunt replacement and then had to go tell the parents post surgery that it was not the shunt. He said they would rather watch and wait if they can before they go open kids up. It all made sense and we left feeling much better. It does not make the week of suffering go away. I guess the sad thing is ...if I wanted a second opinion, I would have to fly somewhere, because we had the whole team at Primary's. Their are no other pediatric near surgeons in our area.
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