Monday, March 21, 2011

Things are looking up on the outside!

Nero surgery came around and decided it was best to hold off on surgery. Avri is being persistent that she dose not have a head ache any more. She is still extremely tired. We are being pulled a couple different directions here. I had some one say sit her up ... another say no lay her down (keep her flat) One comes in and says lets get you showered and get you out of here. I am saying all she has had since yesterday morning is 4 ounces of sprite. Can we at least put something in her and see if it stays before we kick her out the door. She just barely finished a light lunch. She was able to sit up and finish everything but wanted to lay right back down. She is more alert and talking to people more. She is responsive. Her heart rate is up and more stable. She has more color to her face. We technically are not on nero surgery's service, we are on pediatrics service...so we are now waiting to see what they have to say about everything. The scariest thing to me is that no one that is talking to me about Avri's care and the plan is confident in what they are deciding.
I can't help but think of the smile on the residents face on morning rounds. I am wondering if he thinks the round of laxatives, suppository, and enema was the answer. If he only knew the night nurses refused to do it and just left it alone. They were all talking about how when these guys don't have the answer they order an enema. I find it unsettling that these nurses don't respect the nero surgeons enough to defend the decisions they are making about my child's care. I have heard be persistent and so much uncertainty this visit than ever before. In my mind the nurses should be saying "these guys know what they are doing trust in their plan"

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