The nero surgeon just came in to see Avri before surgery. She was smiling at him as he was talking to her, and was able to answer his questions. Any of you that know Avri this is not unusual for her. She will smile up until the minute she throws up on you!
He said "he was not doing surgery on her "...."she looks to good" He totally discounted the way she has looked and everything else that has gone on. He wants to look at her again this afternoon and see how she feels. She is still NPO orders though. If she looks good at lunch time then they will just feed her and wait and see how she is until tomorrow. I have a very angry nurse and a couple residents seem to be frustrated as well. So much for the plan and the results. If they don't come up with some thing and stop doing CT scans and xrays, we are going to be dealing with cancer or extra body parts because of all the radiation. Welcome to our roller coaster ride! If I was the swearing type this post would have an advisory for language on it right now.
Avri was born in 1997 with congenital hydrocephalus. She currently has 2 vp shunts. This is a blog about a girl who has every thing stacked against her. The doctors said she should not live. This is for inspiration to anyone who has ever been told it is not possible. This is all about Avri's struggles and triumphs!
good luck! Do you have a case manager or social worker working with you? sometimes it takes a third party to really get things moving. Sometimes the doctors don't see the whole picture and the parents feel stuck and that third party takes everything and communicates on both ends making a better result. Just a thought.... you actually know how it all works and probably better than me. I know Tracee helped Hattie with her state report some...does she need me to get a board for her or anything? I am going to work tonight and tomorrow but am going to be working with Lily on it all so having another would not be a big deal....my prayers are with you. Sharon
ReplyDeleteI have not heard of the case manager thing, but if we are in the same spot this evening. I will be looking into it for sure. All the nero surgeons are not even on the same page. Hattie probley does need help on her report. I am sad to say I have no idea what she has even done. She will be at Sarah's house for the rest of the day if you don't mind helping her out that would be great. They have been worried and wanted to be at the hospital when Avri came out of surgery and that was the plan first thing this morning, so now I am bringing them home and they are all to confused and just not focused enough to even be at school today.
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