March 20th 2011 Here we go again!

Friday morning Avri called me from school and asked me if I would bring her some ibuprofen because she had a head ache. Matt brought it to her on his way out for work. Avris teacher told Matt how well she was doing and what a great difference he had seen in her since the surgery. He was not alone in his observations. I had also noticed the positive changes in her. It was about an hour and a half later that Mr Lindberg called me and said "Avri just came back from keyboarding and is upset because she could not see her text book" HOLY COW...RED FLAG. I have to say this was very scary news. I was having a hard time processing what he just said so I called back and asked for a few more details. I heard Avri in the back ground answer the question She said " Like I can see you (talking to Mr Lindberg) but I can't see small things ,like my book" I hung up and was immediately on the phone trying to find a baby sitter and leaving messages with nero surgery. I was thinking did something bleed in her brain. In all these years she has never complained of blurry vision. I dropped my youngest son off to a babysitter and left to pick up Avri. Nero surgery still had not called me back but this seemed to serious to sit on. As I was walking up to the doors at the school I got another call from her teacher saying " She is going down hill fast, she just wants to lay down and go to sleep" I got Avri in the car and we were off. I was almost to the 7200 exit when she began to throw up . I only had a small cup with me and it quickly over flowed. So I had her vomit into her blanket. It was everywhere. I got off the freeway and stopped at the first gas station. I have to say it was the cheveron right off 72nd. I ran in and a lady named Victoria was at the counter. I asked her if she had a couple sacks I could have for my vomiting daughter. She gave me some sacks and then said you can grab a couple rags out from under the sink. So I went and got some rags and was getting them wet. On my way out I noticed this nice lady was already on her way out to my car. She was getting Avri out and bringing her into the bathroom to help clean her up. This woman actually was washing her sleeves and hands that were covered in vomit. Something... I gag at and she is my own daughter. She gave us everything we needed to make it up to the hospital with no more accidents. She even took a pack of tissues off the self and said "here you might need these". I honestly have never in all our experiences had anyone step up like that (who is a complete stranger)and help out like that. I can say this is not the first time I have pulled into a gas station with vomit all over the place. This woman went so far out of her way for us.
So Avri's scans look pretty good. Is what we are told and they think her pressures may be set wrong. It made no sense to me that the pressure of her valves would not be set the same as what they were for the last 6 years but I am not the doctor. I did voice my opinion and when the resident came back he said they were going back to what she was at before. Avri's shunt valves are magnetic so all they have to do it stick this magnetic machine right over her valve and change it. He reset her and they released us.
Saturday Avri wakes up and tells me She feels much better. I am not believing her because she is white as a ghost but I can't force her to say differently. One big factor here is that this is my sisters wedding day. Avri and the rest of the kids have been looking forward to going. We missed the dinner the night before and Avri felt bad about that. So it was about 2pm. I was fixing Avris hair and she just started to cry. She said her head hurt. I asked her what she wanted to do and she said finish fixing my hair I want to go to Tara's wedding. So we are about 20 minutes from the wedding sight and Avri starts to throw up again. (I was prepared this time) We went in Avri tried so hard to just be a part of things. She was shaking and said her vision was blurry in and out. It was 5 minutes before she walked down the isle and Avri said "I can't take it any more, we have to go" I could see that look in her eye and bolted for the door. As soon as we stepped out, she began to throw up again. My family agreed to keep the girls at the wedding. The boys did not want to stay so the 5 of us left. My wonderful neighbor and friend took the boys. Matt and I took Avri back to the hospital. By the time we arrived Avri could barely stand on her own. I steadied her and helped her walk in. (somewhere in the process she took off her shoes so we no longer had shoes for her)
The conclusion here is that she was admitted. She has a killer headache that no amount of Tylenol and ibuprofen was touching. She is pretty out of it. She can not tolerate the noise. At this point she will not even sit up the pain is so bad for her. She can not hold down any liquids so she is relying on her iv fluids. She had a scan today and the ventricles are more enlarged but not enough to take her right back for surgery. She had a blessing and in faith I want to say that very moment they said no more pain just give the girl some loratab and zofran. She is more comfortable now. She is able to rest a bit anyways. They have her NPO after midnight because if she is not better by morning they are going to do surgery. We are holding on to the hope that it is all pressure changes but it is not likely. She more than likely has blood that clotted in the valves and has blocked the fluid from draining.
In explaining the time line to the doctor avri interrupted me when I said she said she felt better Saturday morning , She said " Mom I lied...I wanted to go to Tara's wedding so bad" She is the only person I know in the world that would suck it up just to go to a special event like that. In the end we missed the wedding but the other girls were there and she at least got to see Tara in her dress and wish her luck.