Around 10:00pm Avri started up with another head ache. She was miserable all night. She ended up getting loratab and zofran again to help keep her more comfortable. The attending nero surgeon was finally able to see her at almost her worse today during rounds. He ordered another CT (which showed bigger ventricles) We are just waiting for them to come get her. She will have her right shunt fixed and repositioned.
Another development...Yesterday they were still concerned about her bowels. I told them she said she had a bowel movement, but they said she may not be on the neurological level to know that for sure. It was totally ridicules but they ended up giving her a suppository and an enema anyways (just to rule it out) . So then they decided to take a sample once she started going. (because it was pure water) I was thinking what do you expect? So I wake up with a no contact order on the door (anyone who comes in the room has to wear gloves). They say she contracted CDIFF (some kind of bacterial infection) They said that she just barely got it because she is not showing signs yet other than the runny stool (which is their fault) but warned me that she was going to get really sick. They are going to have to treat her with a 14 day course of antibiotics to treat it. This infection does not effect her surgery at all it is just another issue we get to deal with. In the whole picture in my mind...if they would have treated her shunt issues a few days ago she would not be dealing with this infection now.
Avri was born in 1997 with congenital hydrocephalus. She currently has 2 vp shunts. This is a blog about a girl who has every thing stacked against her. The doctors said she should not live. This is for inspiration to anyone who has ever been told it is not possible. This is all about Avri's struggles and triumphs!
Happy for the surgery, sad about the infection. Praying that all goes well everyone will be home soon. HUGS.
ReplyDeleteKatie, I am sorry about the CDiff. Hospitals are so bad for getting other bacteria/infections. I am working tomorrow and will come see you. Do you need me to bring you anything from your home? Or anything else? Maybe we could even go have lunch together in the cafeteria or something, just to get you outta the room for awhile. Avri is constantly in my prayers, as are you. Her surgery will go great this morning and hopefully she will be on the road to recovery. Call me if you need anything!! (I will try and keep my cell with me at all times today...I just barely noticed your txt. late last nite that you send 2 days ago I think. I'm a txting loser.)
ReplyDelete