Avri went in for her high resolution CT scan at 6am. Nero surgery came in at around 7am and said "her right ventricle did not go down at all after opening the valve up last night. This means without a doubt her right shunt is not working at all and needs to be replaced already. They are saying the spot where the main catheter is sitting inside the ventricle in her brain is no longer a good spot, so they are going to move the whole thing. Retracting the entire existing unit is move evasive and risky than just replacing clogged valves but hopefully it will prevent the same thing from happening that just happened. Her last shunt valve worked for a few days before it clogged up.
Her surgery will be some time late morning. I know their are a lot of people wondering what they can do. Just keep her in your prayers, Sarah has all the other kids and I am not leaving here without Avri, so that does not leave much else. I have to thank everyone for the meals and treats over the last week it takes a load off for sure, and has been greatly appreciated. Hopefully this will go great and we will be home tomorrow afternoon.
Avri was born in 1997 with congenital hydrocephalus. She currently has 2 vp shunts. This is a blog about a girl who has every thing stacked against her. The doctors said she should not live. This is for inspiration to anyone who has ever been told it is not possible. This is all about Avri's struggles and triumphs!
Oh Katie, I hope and pray all goes well this time around! HUGS!
ReplyDeleteKatie, thanks for doing the blog. Avri is such a fighter and an example to all. She makes me want to do better. I am glad that y'all are finally getting some answers and we are praying for her and your family.
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